Tag: journey

Importance of a Parent Advocate

Importance of a Parent Advocate

I am holding my breath as I write this – I can’t quite believe it myself. However, I think I might actually be able to say we are indeed making progress again. We are walking by baby steps and a glacier just passed us in 

Ellie’s Gut Rest and Allergies

Ellie’s Gut Rest and Allergies

Ellie is currently in a period of gut rest – again – and having to take a break from her treasured blueberries. This is heartbreaking for everyone. Gut Rest – Again I know I have mentioned gut rest for FPIES before several times. Also, how 

Ellie’s One Step Forward, Two Steps Back

Ellie’s One Step Forward, Two Steps Back

It’s been one of those days – that has lasted over a month. We have been living the ‘one step forward, two steps back’ life with Ellie. Through these setbacks though, at least there were a couple wins. I’m going to hold on to those 

Ellie’s FPIES safe foods update: cauliflower

Ellie’s FPIES safe foods update: cauliflower

  Cauliflower and blueberries. Look at that variety folks! Ellie can eat TWO things! TWO FPIES safe foods! We are back to having options in flavors. Turns out she doesn’t approve as much of cauliflower as she does blueberry. She does, however, love the little 

Ellie’s Blueberry Trial FPIES Results

Ellie’s Blueberry Trial FPIES Results

  This is it. I’m going to do it. I am going to confirm that yes, blueberries are an FPIES safe food for Ellie. She has a safe food again! Halleluiah!   One Blueberry trial step forward Such an incredible amount of relief in knowing 

Ellie’s FPIES Journey – 1st Update

Ellie’s FPIES Journey – 1st Update

Do you ever just hear yourself saying the same thing over and over and over again? If you have kids, you probably do quite frequently. Well, it’s my turn to say for the 59th time, “Here we are again with a change of plans for 

Ellie’s Journey through FPIES

Ellie’s Journey through FPIES

There is so much comfort in the warmth from a good cup of coffee or tea in the morning. The mug warms your hands, and you know you will savor that first sip. I have been through MANY cups of coffee and tea over the